StudyFinder

Global Registry For Novel Therapies In Rare Bone & Endocrine Conditions

Status: Recruiting

This research study is looking for participants that have a rare condition that affects their hormones and/or bone health and who are starting on a new form of therapy for this condition. By volunteering, the participant's information will be collected routinely as a part of clinical care. Combining our knowledge and experiences in people with rare conditions, registries can improve our understanding of these conditions and improve the care of all those affected.

I'm interested

Sex: Male or Female
Age Group: Not specified
This study is NOT accepting healthy volunteers
Inclusion Criteria:

• all those who have a rare condition that affects their hormones or bone health
• any child receiving human growth hormone treatment
Exclusion Criteria:

• unable to meet the Inclusion Criteria above
Conditions:

Rare Diseases, Children's Health, Bone, Joint & Muscle

Keywords:

bone health, rare conditions, registry, growth hormone

Study Contact: Cydney Coleman - colem520@umn.edu
Principal Investigator: Brad Miller, MD, PhD
Phase: PHASE4
IRB Number: STUDY00022139
See this study on ClinicalTrials.gov

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