ELEVATE, a global observational longitudinal prospective registry of patients with acute hepatic porphyria (AHP)


This is a global, multicenter, prospective, observational, longitudinal registry conducted to characterize the natural history and real-world clinical management of patients diagnosed with AHP. This protocol will not recommend the use of any specific treatments, visits, or procedures. No medication is provided as part of registry participation.

I'm interested

12 years and over
This study is NOT accepting healthy volunteers
Inclusion Criteria:
Documented diagnosis of AHP, per physician's determination
Exclusion Criteria:
Currently enrolled in a clinical trial for any investigational agent

Digestive & Liver Health, Rare Diseases

Clinics and Surgery Center (CSC)

Diondra Howard -
Gregory Vercellotti
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