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ELEVATE, a global observational longitudinal prospective registry of patients with acute hepatic porphyria (AHP)

Status: Recruiting

This is a global, multicenter, prospective, observational, longitudinal registry conducted to characterize the natural history and real-world clinical management of patients diagnosed with AHP. This protocol will not recommend the use of any specific treatments, visits, or procedures. No medication is provided as part of registry participation.

I'm interested

Sex: Male or Female
Age Group: 12 years and over
This study is NOT accepting healthy volunteers
Inclusion Criteria:
* Documented diagnosis of AHP, per physician's determination
Exclusion Criteria:
* Currently enrolled in a clinical trial for any investigational agent
Conditions:

Digestive & Liver Health, Rare Diseases

Keywords:

Clinics and Surgery Center (CSC)

Study Contact: Diondra Howard - howar709@umn.edu
Principal Investigator: Gregory Vercellotti
IRB Number: SITE00001194
See this study on ClinicalTrials.gov

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