Muscular Dystrophy Association Neuromuscular Observational Research (MOVR) Data Hub Protocol (#MDACS1)

Status: Recruiting

Description:

The Muscular Dystrophy Association (MDA) wants to collect information about individuals with neuromuscular disease to better understand the disease progression and ultimately improve the medical care, quality of life, and survival of those with neuromuscular disease. To collect this information, MDA has created a data registry called the Neuromuscular Observational Research Data Hub (referred to as the “MOVR Data Hub”).

I'm interested

Sex: Male or Female

Age Group: Not specified

This study is NOT accepting healthy volunteers

Inclusion Criteria:

Any person who has a diagnosis of ALS, DMD, BMD, SMA, or any other neuromuscular diseases

Exclusion Criteria:

There are no exclusion criteria

Conditions:

Brain & Nervous System

Keywords:

Muscular Dystrophy, Neuromuscular diseases, Muscular Dystrophy Association (MDA)

Study Contact: John Martone - marto045@umn.edu

Principal Investigator: Peter Karachunski

IRB Number: SITE00000485

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Muscular Dystrophy Association Neuromuscular Observational Research (MOVR) Data Hub Protocol (#MDACS1)

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