StudyFinder

ALX-HPP-501: An Observational,Longitudinal Prospective, Long-term Registry of Patients with Hypophosphatasia

Recruiting

This multinational, multicenter, observational, prospective, long-term registry is designed to collect data on epidemiology, HPP history, clinical course, symptoms (including multi-systemic aspects of disease), and burden of disease from patients of all ages who have a diagnosis of HPP. In addition, the Registry will collect data on asfotase alfa dosing, effectiveness of treatment, SAEs, immunogenicity, pregnancy and neonatal outcome data (for patients treated with asfotasealfa only), and targeted EOI.

I'm interested

This study is NOT accepting healthy volunteers

Hypophosphatasia (HPP)

Kyriakie Sarafoglou - saraf010@umn.edu
Kyriakie Sarafoglou
NA
STUDY00004936
NCT02306720
See this study on ClinicalTrials.gov

Back