ELEVATE, a global observational longitudinal prospective registry of patients with acute hepatic porphyria (AHP)
This is a global, multicenter, prospective, observational, longitudinal registry conducted to characterize the natural history and real-world clinical management of patients diagnosed with AHP. This protocol will not recommend the use of any specific treatments, visits, or procedures. No medication is provided as part of registry participation.
Acute Hepatic Porphyria
AHP, Acute hepatic porphyria, Clinics and Surgery Center (CSC), Givosiran
Diondra Howard - email@example.com
STUDY00012826See this study on ClinicalTrials.gov