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ELEVATE, a global observational longitudinal prospective registry of patients with acute hepatic porphyria (AHP)

Recruiting

This is a global, multicenter, prospective, observational, longitudinal registry conducted to characterize the natural history and real-world clinical management of patients diagnosed with AHP. This protocol will not recommend the use of any specific treatments, visits, or procedures. No medication is provided as part of registry participation.

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This study is NOT accepting healthy volunteers

Acute Hepatic Porphyria

AHP, Acute hepatic porphyria, Clinics and Surgery Center (CSC), Givosiran

Diondra Howard - howar709@umn.edu
Gregory Vercellotti
Post Approval
STUDY00012826
NCT04883905
See this study on ClinicalTrials.gov

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